So grateful this column is not about the Pac 12, the Big 10, the Portal, the NBA, the NFL or much of your usual writings. They get, for this old lady, kind of boring.
So sad that this wonderful family and its delightful son, William, must be going through this life altering challenge which no one promised couldn't happen, but no one ever thought would be on their playlist when he was born.
Life is so often unfair and the results can be devastating. I hope your readers find it in their hearts to contribute to their donation site. A phrase spoken recently in regards to the political situation we're all facing the past few months seems to be perfect here:
Nobody can do everything, but everybody can do something.
I hope your readership helps contribute to the possibility of helping young William conquer this serious health issue and live a quality life, no matter how long it may be.
Thanks for writing such wonderful human interest stories.
Done. Thank you once again, John. My message to them and anyone else is a paraphrasing of Stuart Scott: "You make your life real by how you live, why you live, and the manner in which you live."
You are a bright and beautiful light in this world—a brave little warrior with a heart full of courage and a spirit that shines with God’s love. Though you’re only six, your strength and smile inspire everyone around you. Your mommy and daddy, Kati and Joe, love you more than words can say. They are fighting every single day with faith, hope, and determination to raise the money needed for your special procedure, believing that miracles still happen. God walks with you always, William—He holds your hand, whispers peace to your heart, and surrounds your family with love and strength. So many people are cheering you on, and we all believe that the best is yet to come. Keep shining, little hero......we're all praying like crazy that you win this fight!
Joe, prayers also to you as you prepare for the journay up the Rogue!!
Thank you for this article John. I'm sitting in San Antonio after watching the best Final Four ever and this piece is a great reminder of what's truly important. Thank you also for the link to help in William's journey to healing. Sending thoughts and prayers to him and his family.
You just keep climbing that mountain of great journalism!
I have a rare disease FOSMN. So rare virtually no interest in funding any research for it. But about the time one could feel sorry for oneself you see others that have it far worse than you.
Your article certainly puts things in proper perspective for me. I am old and had a great life, this little boy
Is not as fortunate as I have been. Nothing is sadder than small children and theirdiseases
JC, I have a very good high school friend whose son has had this since birth. He is now 19. Fortunately for him his dad is a very bright guy who has been researching this the entire time and I have followed the process. He has literally traveled the world, and I am convinced he knows as much or more than most doctors. I am sending this to him. Very timely piece.
How can these articles not put life into its proper perspective? I sadly know other children facing health crisis in their all too young lives and parents struggling with insurance and drug companies. Children in need deserve the help of family and friends but even more the help of insurance and pharmaceutical companies. William, may there be many more good days ahead. God Bless you and your family. John, thank you for another important and well written message.
How lucky we are to have writers like you to make readers like us aware of what's truly important in life-not Final Four, not NIL, not PAC 12, but day-to-day family life, love, struggles and hope. Thanks, John, for finding the helpers!
This makes me very angry. Why can't drug company's team up to create a separate entity to pool resources and do clinical trials on rare diseases. I can understand why one company can't justify multiple millions on this, but combined resources could. Additionally, government can step in with funding from waste, ie. NGO's getting our tax dollars to fill the coffers of politicians. That money, recaptured, could be put to use in these rare diseases. Greed is the worst disease of all, and it is sad that people suffer while others profit.
I know the disease all too well. We lost my sister when she was 14 and I was 11. Fortunately, in the last fifty years, treatments have progressed and there is much more hope now.
So grateful this column is not about the Pac 12, the Big 10, the Portal, the NBA, the NFL or much of your usual writings. They get, for this old lady, kind of boring.
So sad that this wonderful family and its delightful son, William, must be going through this life altering challenge which no one promised couldn't happen, but no one ever thought would be on their playlist when he was born.
Life is so often unfair and the results can be devastating. I hope your readers find it in their hearts to contribute to their donation site. A phrase spoken recently in regards to the political situation we're all facing the past few months seems to be perfect here:
Nobody can do everything, but everybody can do something.
I hope your readership helps contribute to the possibility of helping young William conquer this serious health issue and live a quality life, no matter how long it may be.
Thanks for writing such wonderful human interest stories.
Pulitzer Prize stuff
This is why you’re the best in the business
Done. Thank you once again, John. My message to them and anyone else is a paraphrasing of Stuart Scott: "You make your life real by how you live, why you live, and the manner in which you live."
Dear William,
You are a bright and beautiful light in this world—a brave little warrior with a heart full of courage and a spirit that shines with God’s love. Though you’re only six, your strength and smile inspire everyone around you. Your mommy and daddy, Kati and Joe, love you more than words can say. They are fighting every single day with faith, hope, and determination to raise the money needed for your special procedure, believing that miracles still happen. God walks with you always, William—He holds your hand, whispers peace to your heart, and surrounds your family with love and strength. So many people are cheering you on, and we all believe that the best is yet to come. Keep shining, little hero......we're all praying like crazy that you win this fight!
Joe, prayers also to you as you prepare for the journay up the Rogue!!
Thank you for this article John. I'm sitting in San Antonio after watching the best Final Four ever and this piece is a great reminder of what's truly important. Thank you also for the link to help in William's journey to healing. Sending thoughts and prayers to him and his family.
You just keep climbing that mountain of great journalism!
I have a rare disease FOSMN. So rare virtually no interest in funding any research for it. But about the time one could feel sorry for oneself you see others that have it far worse than you.
Your article certainly puts things in proper perspective for me. I am old and had a great life, this little boy
Is not as fortunate as I have been. Nothing is sadder than small children and theirdiseases
JC, I have a very good high school friend whose son has had this since birth. He is now 19. Fortunately for him his dad is a very bright guy who has been researching this the entire time and I have followed the process. He has literally traveled the world, and I am convinced he knows as much or more than most doctors. I am sending this to him. Very timely piece.
John, Bravo, Bravo, Bravo! Again, I think of how fortunate your daughters are to have you as their Dad. I'm sure your wife is a gem as well.
How can these articles not put life into its proper perspective? I sadly know other children facing health crisis in their all too young lives and parents struggling with insurance and drug companies. Children in need deserve the help of family and friends but even more the help of insurance and pharmaceutical companies. William, may there be many more good days ahead. God Bless you and your family. John, thank you for another important and well written message.
I mean, c'mon. What's fifty or a hundred bucks... I couldn't imagine spending a day in this family's shoes. Another gem, John. Nicely done.
How lucky we are to have writers like you to make readers like us aware of what's truly important in life-not Final Four, not NIL, not PAC 12, but day-to-day family life, love, struggles and hope. Thanks, John, for finding the helpers!
Kids like this really puts things in perspective. Another wonderful article. I cried
As the great Jim Valvano once said “Don’t give up, don’t ever give up.” To all your readers John…please donate.
This makes me very angry. Why can't drug company's team up to create a separate entity to pool resources and do clinical trials on rare diseases. I can understand why one company can't justify multiple millions on this, but combined resources could. Additionally, government can step in with funding from waste, ie. NGO's getting our tax dollars to fill the coffers of politicians. That money, recaptured, could be put to use in these rare diseases. Greed is the worst disease of all, and it is sad that people suffer while others profit.
John thanks for sharing this story with us. Good luck to the little guy. He is bring us all together and we are better off for his life.
I know the disease all too well. We lost my sister when she was 14 and I was 11. Fortunately, in the last fifty years, treatments have progressed and there is much more hope now.